Brain Injury Bites
Brain Injury Bites explores the realities of life after brain injury through honest conversations, expert insights, and lived experience. Hosted by Brooke Trotter, a survivor of a traumatic brain injury, and Ashwini Kamath, a solicitor and Headway Warrington trustee, this podcast offers practical advice and emotional support for survivors, families, and professionals. Each episode dives into topics such as rehabilitation, fatigue, memory loss, nutrition, legal support, and daily coping strategies. Whether you are navigating a recent injury or supporting someone who is, Brain Injury Bites is your trusted guide to understanding and managing life after brain trauma.
Episodes

Thursday Nov 11, 2021
Brain Injury Bites - Introduction
Thursday Nov 11, 2021
Thursday Nov 11, 2021
Hello, and welcome to Brain Injury Bites, a series of bite-sized podcasts helping brain injury survivors.
This is a series of podcasts based around the experiences of sustaining a brain injury, and provides helpful hints and tips for injured people, their friends and family.
To keep up to date with our podcast, follow us on our social media accounts:
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Brain Injury Bites is now part of the Community Compass app! Download now and take the first step toward reclaiming your best life - because you’re not alone in this journey.
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Monday Nov 15, 2021
The early days after a brain injury
Monday Nov 15, 2021
Monday Nov 15, 2021
In this first episode of Brain Injury Bites, Brooke Trotter shares what happened the night his life changed forever after being hit by a car in Manchester.
Joined by co-host Ashwini Kamath — a solicitor and brain injury advocate — Brooke talks about the immediate aftermath of his traumatic brain injury and the early days that followed.
Together, they explore:
The night of Brooke’s accident
What happens during the “golden hour” after trauma
How his family were told, and their emotional response
His time in intensive care, waking from a coma, and the Glasgow Coma Scale
Early advice for loved ones supporting someone with a brain injury
Brooke and Ashwini reflect on the raw early moments after a brain injury, from family trauma and hospital care to the importance of asking questions and looking after yourself as a carer.
Whether you’re living with a brain injury, supporting someone who is, or want to better understand the journey, this episode lays the foundation for what’s to come.
Chapter Markers
00:00 – Welcome to Brain Injury Bites02:26 – Brooke’s Story09:46 – How Brooke’s Family Coped13:30 – Brooke’s Treatment and Recovery18:06 – Early Advice After a Brain Injury
Resources:
Episode One: The early days after brain injury - Information Sheet
Helpful links:
Glasgow Coma Scale
Golden hour trauma Research
For a transcript, follow the link below:
Episode 1: Transcript
To keep up to date with our podcast, follow us on our social media accounts:
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Community Compass app!
Brain Injury Bites is now part of the Community Compass app! Download now and take the first step toward reclaiming your best life - because you’re not alone in this journey.
Google Play
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Notice:
Information and other content provided in this Podcast should not be taken as providing medical advice or recommendations. Please always consult your doctor or treating team for medical advice.

Tuesday Nov 16, 2021
Journey in the hospital of a brain injury survivor
Tuesday Nov 16, 2021
Tuesday Nov 16, 2021
In this episode of Brain Injury Bites, Brooke and Ashwini explore what it’s like to wake up in hospital after a traumatic brain injury — from intensive care through to high dependency and early rehab.
Brooke opens up about waking from a coma, experiencing vivid and confusing hallucinations, and the emotional impact of leaving the safety of the hospital routine for the outside world.
Together they discuss:
ICU, tracheotomies, and the importance of early physio
What “post-traumatic amnesia” really feels like
Why the hospital can be a “fake environment” for recovery
Coping with overstimulation outside the ward (like a trip to the Trafford Centre)
Tips for friends and family supporting someone in hospital
This episode gives an honest, first-hand look into the early days of recovery and the complex emotional and physical challenges people face after brain injury.
Chapter Markers
00:24 – A&E to ICU: Brooke’s Early Hospital Journey05:58 – Physio, Psychology and Rebuilding the Body08:37 – The “Fake Environment” of Hospital Life11:38 – A Trip to the Trafford Centre: Reality Hits15:47 – Dreams, Delusions, and Confusion22:40 – Tips for Family and Friends
Resources:
Episode Two - Journey in the hospital - Information Sheet
Helpful links:
Journey after major trauma - https://www.gmccmt.org.uk/major-trauma/patient-journey/
Visiting someone in the hospital - https://www.nhs.uk/nhs-services/hospitals/going-into-hospital/visiting-someone-in-hospital/
Post-traumatic amnesia - https://www.headway.org.uk/about-brain-injury/individuals/effects-of-brain-injury/post-traumatic-amnesia/
Article on confabulation (by Michelle Munt) - https://www.cfglaw.co.uk/blog/why-a-brain-injury-can-cause-confabulation
Headway information library - https://www.headway.org.uk/about-brain-injury/individuals/information-library/
For a transcript, follow the link below:
Episode 2: Transcript
To keep up to date with our podcast, follow us on our social media accounts:
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Community Compass app!
Brain Injury Bites is now part of the Community Compass app! Download now and take the first step toward reclaiming your best life - because you’re not alone in this journey.
Google Play
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Notice:
Information and other content provided in this Podcast should not be taken as providing medical advice or recommendations. Please always consult your doctor or treating team for medical advice.

Tuesday Nov 23, 2021
Dealing with fatigue and the importance of rest after a brain injury
Tuesday Nov 23, 2021
Tuesday Nov 23, 2021
In this episode of Brain Injury Bites, Brooke Trotter and Ashwini Kamath dive into one of the most persistent and misunderstood symptoms after a brain injury: fatigue.
They explore Brooke’s personal struggle with understanding the need for rest, and how pushing through tiredness actually delayed his recovery. From hospital routines to the challenge of structuring rest at home, they share honest reflections and helpful tips for managing post-injury fatigue.
Together, they discuss:
Why rest is essential to brain recovery and how ignoring it can make things worse
The structure of hospital life vs. the chaos of home
How brain injury affects planning and time management
Finding the right balance between doing too much and doing nothing at all
Practical insights for survivors and caregivers navigating fatigue
Whether you're recovering from a brain injury or supporting someone who is, this episode shines a light on the importance of listening to your body and building rest into your routine.
Chapter Markers:
00:00 - Welcome and Introduction to Fatigue00:49 - Brooke’s Experience with Overexertion02:47 - Challenges with Time Organisation After Brain Injury07:53 - The Problem with Doing Too Much11:44 - Red Bull, Crashes, and Misjudging Energy11:46 - Fatigue or Just Forgetfulness? (The Royal Mail Scam)20:54 - Practical Tips and Hints for Managing Fatigue
Resources:
Episode Three - Dealing with fatigue and the importance of rest after a brain injury - Information Sheet
Helpful links:
To do lists/organisational skills - https://todoist.com/
Weekly Schedule - Download
For a transcript, follow the link below:
Episode 3: Transcript
To keep up to date with our podcast, follow us on our social media accounts:
Twitter
Facebook
Instagram
Community Compass app!
Brain Injury Bites is now part of the Community Compass app! Download now and take the first step toward reclaiming your best life - because you’re not alone in this journey.
Google Play
Apple App Store
Notice:
Information and other content provided in this Podcast should not be taken as providing medical advice or recommendations. Please always consult your doctor or treating team for medical advice.

Tuesday Nov 30, 2021
Memory problems after a brain injury
Tuesday Nov 30, 2021
Tuesday Nov 30, 2021
In this episode of Brain Injury Bites, Brooke Trotter and Ashwini Kamath discuss how memory is impacted after a brain injury and practical ways to adapt when everyday tasks become more challenging to remember.
Together, they reflect on Brooke’s personal experiences, including forgetting where he parked, running a bath that nearly flooded the house, and forgetting basic shopping items. They also talk about the emotional impact of memory issues and how fatigue, anxiety, and the environment can make things worse.
They explore:
The difference between retrograde and anterograde amnesia
Brooke’s real-life memory mishaps and the strategies he uses now
How phones, alarms, and apps can support daily life
Low-tech memory tools like notebooks, whiteboards and post-its
The connection between memory, identity, and independence
Tips for creating a routine and using assistive technology with confidence
This episode is packed with useful strategies and light-hearted honesty about what it’s really like living with a brain injury. Whether you’re recovering yourself or supporting someone who is, there’s something here to help.
Chapter Markers:
00:00 - Introduction to Memory and Why It Matters01:56 - Different Types of Memory Loss After Brain Injury03:13 - Real-life Memory Challenges: Losing the Car06:58 - Phones, Notebooks and Everyday Memory Tools09:00 - Memory Mistakes at Home: Baths and Burnouts15:04 - Tips and Advice for Managing Memory Day to Day
Resources:
Episode four - Memory problems after a brain injury - Information Sheet
Helpful links:
Different types of memory problems after a brain injury
To do lists/organisational skills - https://todoist.com/
Weekly Schedule - Download
For a transcript, follow the link below:
Episode 4: Transcript
To keep up to date with our podcast, follow us on our social media accounts:
Twitter
Facebook
Instagram
Community Compass app!
Brain Injury Bites is now part of the Community Compass app! Download now and take the first step toward reclaiming your best life - because you’re not alone in this journey.
Google Play
Apple App Store
Notice:
Information and other content provided in this Podcast should not be taken as providing medical advice or recommendations. Please always consult your doctor or treating team for medical advice.

Tuesday Dec 07, 2021
Experiencing problems with concentration and attention after a brain injury.
Tuesday Dec 07, 2021
Tuesday Dec 07, 2021
In this episode of Brain Injury Bites, Brooke Trotter and Ashwini Kamath delve into how brain injury impacts attention, concentration, and cognitive load – and how even small tasks can become overwhelming without the right strategies.
Brooke shares how his concentration was reduced to just seconds after his injury, and how he gradually rebuilt it with help from neuropsychologists, repetition, and a lot of patience. From multitasking myths to exploring the benefits of driving with the radio off, this episode delves into how attention works and how it can be retrained. They discuss:
Why multitasking is a myth, especially after brain injury
How distractions can derail tasks and how to minimise them
The power of repetition, alarms, and rigid structure
Strategies for improving focus, including film-watching exercises
How fatigue and cognitive overload make everything harder
Tips for driving, socialising, and getting through the day with more mental clarity
With humour, honesty, and real-life stories, Brooke and Ashwini offer clear advice for anyone struggling with concentration after a brain injury — or for those supporting someone who is.
Chapter Markers:
00:00 - Introduction: How Brain Injury Affects Cognitive Function04:45 - Why Multitasking Doesn’t Work After a Brain Injury06:37 - Returning to Driving and Managing Cognitive Load09:11 - Planning Activities in Short Bursts to Avoid Burnout10:13 - Tips and Advice for Improving Concentration Day to Day
Resources:
Episode five - Experiencing problems with concentration and attention after a brain injury. - Information Sheet
Helpful links:
Headway - Cognitive effects of a brain injury
NHS - Brain training app (recommended by the NHS)
For a transcript, follow the link below:
Episode 5: Transcript
To keep up to date with our podcast, follow us on our social media accounts:
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Community Compass app!
Brain Injury Bites is now part of the Community Compass app! Download now and take the first step toward reclaiming your best life - because you’re not alone in this journey.
Google Play
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Notice:
Information and other content provided in this Podcast should not be taken as providing medical advice or recommendations. Please always consult your doctor or treating team for medical advice.

Tuesday Dec 14, 2021
Coming to terms with a brain injury
Tuesday Dec 14, 2021
Tuesday Dec 14, 2021
In this episode of Brain Injury Bites, Brooke Trotter and Ashwini Kamath take a deep dive into what it means to come to terms with a brain injury — and how the process of acceptance isn’t always straightforward.
They reflect on the emotional and psychological impact of recovery, the reality check that often hits after hospital discharge, and the frustrations of an invisible injury that doesn’t follow a predictable timeline. From confronting fatigue and depression to redefining identity and finding purpose again, Brooke shares openly about the ups and downs of rebuilding life after trauma.
They explore:
Why hospital recovery can be misleading
The emotional crash that often follows discharge
Dealing with unrealistic timelines like the “three-year recovery” myth
How public speaking and small wins helped Brooke move forward
Reframing expectations around work, identity and independence
The importance of encouragement, patience and focusing on what’s possible
Whether you’re navigating your own recovery or supporting someone through theirs, this episode offers powerful insights into resilience, identity and the long journey toward self-acceptance.
Chapter Markers
00:00 - Introduction: Coming to Terms with Brain Injury05:07 - Recovery Timelines and the “Three-Year” Myth11:35 - Work, Fatigue and Adjusting Expectations
Resources:
Episode six - Coming to terms with a brain injury - Information Sheet
Helpful links:
Denial after a brain injury – struggling to come to terms with my brain injury (blog by Brooke)
For a transcript, follow the link below:
Episode 6: Transcript
To keep up to date with our podcast, follow us on our social media accounts:
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Community Compass app!
Brain Injury Bites is now part of the Community Compass app! Download now and take the first step toward reclaiming your best life - because you’re not alone in this journey.
Google Play
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Notice:
Information and other content provided in this Podcast should not be taken as providing medical advice or recommendations. Please always consult your doctor or treating team for medical advice.

Tuesday Dec 21, 2021
Socialising after a brain injury
Tuesday Dec 21, 2021
Tuesday Dec 21, 2021
In this episode of Brain Injury Bites, Brooke Trotter and Ashwini Kamath talk about the often overlooked challenge of socialising after a brain injury. From struggling with background noise to the emotional toll of not feeling like yourself, they explore how relationships and self identity can shift dramatically and what can help.
Brooke shares honest stories of awkward reunions, overwhelming environments, and navigating small talk. Together, they unpack the real world impact of fatigue, memory problems and overstimulation, and why pushing through is not always the answer.
They explore:
Why returning to social situations can feel overwhelming
The emotional impact of changed relationships and isolation
How alcohol and overstimulation can affect confidence and clarity
Understanding literal thinking, humour and social cues after injury
The challenge of making new connections and handling small talk
Practical advice on pacing, planning ahead and creating an exit plan
Whether you are navigating social life after brain injury or supporting someone who is, this episode offers insight, empathy and practical tips for rebuilding confidence and connection.
Resources:
Episode seven - Socialising after a brain injury - Information Sheet
Helpful links:
Headway Brain Injury Identity Card - https://www.headway.org.uk/supporting-you/brain-injury-identity-card/
For additional resources, and transcript, follow the link below:
Episode 7: Resources and Transcript
To keep up to date with our podcast, follow us on our social media accounts:
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Community Compass app!
Brain Injury Bites is now part of the Community Compass app! Download now and take the first step toward reclaiming your best life - because you’re not alone in this journey.
Google Play
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Notice:
Information and other content provided in this Podcast should not be taken as providing medical advice or recommendations. Please always consult your doctor or treating team for medical advice.

Tuesday Jan 04, 2022
Comparing yourself to others
Tuesday Jan 04, 2022
Tuesday Jan 04, 2022
In this episode of Brain Injury Bites, Brooke Trotter and Ashwini Kamath explore the pressure to compare yourself to others, especially on social media, and how that affects recovery after a brain injury.
Brooke shares candid experiences of scrolling through Facebook and feeling left behind, along with how fatigue, isolation and the invisible nature of brain injury fed into those feelings. Together, they talk about the importance of shifting focus away from what others are doing and towards what really helps.
They explore:
Why social media can fuel low mood and self doubt
The difference between online confidence and real life anxiety
Comparing your fatigue to others who “just feel tired”
The importance of perspective, patience and self compassion
How fitness, fundraising and routine can give you purpose
Letting go of people who do not understand your condition
Whether you are living with a brain injury or supporting someone who is, this episode is a reminder that your journey is valid and you do not have to keep up with anyone else.
Resources:
Episode eight - Comparing yourself to others - Information Sheet
For additional resources, and transcript, follow the link below:
Episode 8: Transcript
To keep up to date with our podcast, follow us on our social media accounts:
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Community Compass app!
Brain Injury Bites is now part of the Community Compass app! Download now and take the first step toward reclaiming your best life - because you’re not alone in this journey.
Google Play
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Notice:
Information and other content provided in this Podcast should not be taken as providing medical advice or recommendations. Please always consult your doctor or treating team for medical advice.

Tuesday Jan 11, 2022
The impact on family and friends after a brain injury
Tuesday Jan 11, 2022
Tuesday Jan 11, 2022
In this episode of Brain Injury Bites, Brooke Trotter and Ashwini Kamath explore how brain injury affects not just the survivor but everyone around them. From parents and siblings to lifelong friends and new acquaintances, they reflect on the emotional toll and relationship changes that follow a serious injury.
Brooke shares how his family initially treated him like royalty and how that protective bubble slowly gave way to a new reality. Ashwini highlights the often ignored grief that family and friends experience, and the importance of education and support for those supporting someone with a brain injury.
They explore:
How families cope with the trauma of a loved one’s brain injury
The emotional shift from survival mode to long term recovery
The invisible toll on parents, partners and siblings
Why old friendships may fade and new ones form
The value of empathy, patience and brain injury education
Where to find support for carers and why it is just as vital
This episode is a reminder that brain injury affects the whole support system and that understanding and help should extend beyond the person with the injury.
Resources:
Episode nine - The impact on family and friends after a brain injury - Information Sheet
Helpful links:
Headway: https://www.headway.org.uk/
Brain Injury Group: https://www.braininjurygroup.co.uk/
BASIC: https://www.basiccharity.org.uk/
UKABIF: https://ukabif.org.uk/
For a transcript, follow the link below:
Episode 9: Transcript
To keep up to date with our podcast, follow us on our social media accounts:
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Community Compass app!
Brain Injury Bites is now part of the Community Compass app! Download now and take the first step toward reclaiming your best life - because you’re not alone in this journey.
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Notice:
Information and other content provided in this Podcast should not be taken as providing medical advice or recommendations. Please always consult your doctor or treating team for medical advice.

Tuesday Jan 18, 2022
The importance of esteem after a brain injury
Tuesday Jan 18, 2022
Tuesday Jan 18, 2022
In this episode of Brain Injury Bites, Brooke Trotter and Ashwini Kamath delve into the connection between self-esteem, purpose, and recovery after a brain injury. From early confusion and lost identity to building confidence through public speaking and blogging, Brooke reflects on how he found new meaning after his injury.
They discuss how the pressure to return to work or feel “productive” can clash with the invisible symptoms of brain injury. They also discuss finding ways to feel valued that align with your abilities, energy, and personality — whether that involves employment, volunteering, or something more creative.
They explore:
Why losing your job or role can impact your self-worth
Building confidence through purpose-driven activities
Brooke’s journey into public speaking, blogging and fundraising
Why comparing yourself to others can be damaging
Finding work or structure that fits your recovery
Practical advice for returning to work, setting goals and managing expectations
This episode serves as a reminder that purpose does not necessarily mean a nine-to-five job and that building self-esteem after a brain injury requires time, patience, and support.
Resources:
Episode ten - The importance of esteem after a brain injury - Information Sheet
For a transcript, follow the link below:
Episode 10: Transcript
To keep up to date with our podcast, follow us on our social media accounts:
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Community Compass app!
Brain Injury Bites is now part of the Community Compass app! Download now and take the first step toward reclaiming your best life - because you’re not alone in this journey.
Google Play
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Notice:
Information and other content provided in this Podcast should not be taken as providing medical advice or recommendations. Please always consult your doctor or treating team for medical advice.

Tuesday Jan 25, 2022
Dating and relationships after a brain injury
Tuesday Jan 25, 2022
Tuesday Jan 25, 2022
In this episode of Brain Injury Bites, Brooke Trotter and Ashwini Kamath discuss dating and relationships after brain injury, from awkward first dates to more profound questions of identity, confidence and communication.
Brooke shares personal stories from his early experiences with dating apps, speed dating and social anxiety, as well as the emotional challenges that came with memory problems, fatigue and wanting to “seem normal.” Together, they explore the impact that brain injury can have on both new and long-term relationships.
They explore:
How brain injury affects confidence, spontaneity and communication
The emotional and cognitive impact of dating with memory problems
Navigating honesty, timing and how much to share with new partners
The pressure to return to who you were before the injury
Understanding what long-term partners and carers may go through
Why relationship education and support are just as important for spouses
Whether you're looking to meet someone new or support a partner through recovery, this episode offers honest insight into the emotional realities of love, dating, and connection after brain injury.
For a transcript, follow the link below:
Episode 11: Transcript
To keep up to date with our podcast, follow us on our social media accounts:
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Community Compass app!
Brain Injury Bites is now part of the Community Compass app! Download now and take the first step toward reclaiming your best life - because you’re not alone in this journey.
Google Play
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Notice:
Information and other content provided in this Podcast should not be taken as providing medical advice or recommendations. Please always consult your doctor or treating team for medical advice.

Tuesday Feb 01, 2022
Depression after a brain injury
Tuesday Feb 01, 2022
Tuesday Feb 01, 2022
In this episode of Brain Injury Bites, Brooke Trotter and Ashwini Kamath talk openly about depression after a brain injury — how it shows up, why it is often misunderstood, and what can help.
They explore the emotional crash that comes after the hospital bubble, the pressure to be grateful for surviving, and the quiet burden of invisible symptoms like fatigue, low mood and memory problems. Brooke shares what helped him manage darker days, from seeing a neuropsychologist to using simple tools like notes, structure and social connection.
They explore:
Why sadness and depression are not the same
The link between recovery awareness and emotional wellbeing
Feeling like a burden and struggling to share how you feel
Why routines, exercise and staying connected really matter
Managing energy dips and the negative thinking they bring
Practical advice for building resilience and seeking help
Whether you are living with a brain injury or supporting someone through recovery, this episode offers clarity, reassurance and small but powerful steps to support emotional health.
Resources:
Episode Twelve -Depression after a brain injury - Information Sheet
Helpful links:
Hidden Disability store
Mind: the mental health charity
Headway: Brain Injury Identity Card
For a transcript, follow the link below:
Episode 12: Transcript
To keep up to date with our podcast, follow us on our social media accounts:
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Community Compass app!
Brain Injury Bites is now part of the Community Compass app! Download now and take the first step toward reclaiming your best life - because you’re not alone in this journey.
Google Play
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Notice:
Information and other content provided in this Podcast should not be taken as providing medical advice or recommendations. Please always consult your doctor or treating team for medical advice.

Tuesday May 17, 2022
See the hidden me!
Tuesday May 17, 2022
Tuesday May 17, 2022
In this episode of Brain Injury Bites, Brooke Trotter and Ashwini Kamath explore the hidden challenges of living with an invisible disability, as part of Action for Brain Injury Week and its theme, “See the Hidden Me.”
They discuss what it means to live with a brain injury that may not be obvious to others, and how common assumptions about disability often ignore the reality of symptoms like fatigue, anxiety, memory problems and sensory loss. Brooke shares his personal experience of looking fine on the outside while dealing with difficulties that are often misunderstood or dismissed.
They explore:
What makes brain injury an invisible disability
The impact of memory lapses, anxiety and lack of insight
Feeling misunderstood by strangers and even loved ones
The quiet frustration of symptoms that others cannot see
How small worries, like whether the door is locked, can spiral
Practical strategies that support daily life and wellbeing
Whether you are living with a brain injury or supporting someone through their recovery, this episode offers understanding, empathy and simple ideas to help manage the unseen effects of brain injury.
Helpful links:
Headway UK: Information library
Headway UK: Brain Injury Identity Card
For a transcript, follow the link below:
Episode 13: Transcript
To keep up to date with our podcast, follow us on our social media accounts:
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Community Compass app!
Brain Injury Bites is now part of the Community Compass app! Download now and take the first step toward reclaiming your best life - because you’re not alone in this journey.
Google Play
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Notice:
Information and other content provided in this Podcast should not be taken as providing medical advice or recommendations. Please always consult your doctor or treating team for medical advice.

Monday Oct 02, 2023
Neuropsychology After Brain Injury (Part 1): Mental Health & Acceptance
Monday Oct 02, 2023
Monday Oct 02, 2023
In this episode of Brain Injury Bites, Brooke Trotter and Ashwini Kamath are joined by consultant clinical neuropsychologist Russell Sheldrick for a powerful conversation about recovery, resilience and the emotional journey after a brain injury.
Russell shares his experience working on an acute rehabilitation ward and explains how neuropsychology helps patients build awareness, develop coping strategies and regain confidence during early recovery. Brooke reflects on the pivotal role Russell played in his own rehabilitation, from memory exercises and emotional support to building realistic goals.
They explore:
What neuropsychological rehabilitation looks like in the early stages
Why insight, motivation and support are vital to recovery
The emotional impact of learning what has changed after injury
Strategies for memory, attention and adapting to cognitive challenges
Why recovery does not stop after two years
The importance of structure, self-compassion and pacing your progress
Whether you are recovering from a brain injury or supporting someone who is, this episode offers professional insight, real-life experiences and encouragement to keep moving forward, at your own pace.
For a transcript, follow the link below:
Episode Transcript
To keep up to date with our podcast, follow us on our social media accounts:
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Community Compass app!
Brain Injury Bites is now part of the Community Compass app! Download now and take the first step toward reclaiming your best life - because you’re not alone in this journey.
Google Play
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Notice:
Information and other content provided in this Podcast should not be taken as providing medical advice or recommendations. Please always consult your doctor or treating team for medical advice.

Tuesday Oct 03, 2023
Neuropsychology After Brain Injury (Part 2): Adjusting to a New Identity
Tuesday Oct 03, 2023
Tuesday Oct 03, 2023
In this episode of Brain Injury Bites, Brooke Trotter and Ashwini Kamath continue their insightful conversation with consultant clinical neuropsychologist Russell Sheldrick, exploring recovery, acceptance and the role of family support in brain injury rehabilitation.
They discuss how unrealistic expectations can hinder progress, and why true recovery often begins when people accept how life has changed. Russell explains how neuropsychology works with families to create the right environment for recovery, and why small adjustments can make a big difference.
They explore:
Why acceptance is not giving up but a starting point for adapting
Supporting family and friends through their own emotional journey
The impact of overwhelm, fatigue and sensory overload in daily life
Learning how to socialise differently while still enjoying life
The concept of post traumatic growth and finding positives after injury
What neuropsychological assessments involve and how they help shape rehabilitation
Whether you are navigating brain injury yourself or supporting a loved one, this episode offers honest discussion, practical strategies and encouragement to embrace progress, however slow it may seem.
For a transcript, follow the link below:
Episode Transcript
To keep up to date with our podcast, follow us on our social media accounts:
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Community Compass app!
Brain Injury Bites is now part of the Community Compass app! Download now and take the first step toward reclaiming your best life - because you’re not alone in this journey.
Google Play
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Notice:
Information and other content provided in this Podcast should not be taken as providing medical advice or recommendations. Please always consult your doctor or treating team for medical advice.

Monday Oct 09, 2023
Monday Oct 09, 2023
In this episode of Brain Injury Bites, Brooke Trotter and Ashwini Kamath speak with David Hilton, a solicitor and professional deputy, about the legal and financial support available to people who are no longer able to manage their own affairs after a brain injury.
David explains what the Court of Protection does, how deputies are appointed, and why these roles are essential when someone lacks capacity to make important decisions. Brooke shares his personal experience of living under the Court of Protection and how this support has helped him stay safe, financially stable and independent.
They explore:
What a professional deputy is and how they support clients
The Mental Capacity Act and how capacity is assessed in law
The emotional impact of needing help with everyday decisions
Common misunderstandings about control versus support
Why insight, memory and multi-tasking all affect daily functioning
The importance of empowering people to make their own choices
Whether you are navigating brain injury yourself or helping someone who is, this episode offers practical advice, legal insight and honest conversation about trust, support and making life work when you need help.
For a transcript, follow the link below:
Episode Transcript
To keep up to date with our podcast, follow us on our social media accounts:
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Community Compass app!
Brain Injury Bites is now part of the Community Compass app! Download now and take the first step toward reclaiming your best life - because you’re not alone in this journey.
Google Play
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Notice:
Information and other content provided in this Podcast should not be taken as providing medical advice or recommendations. Please always consult your doctor or treating team for medical advice.

Tuesday Oct 10, 2023
Court of Protection After Brain Injury (Part 2): Who Makes the Decisions?
Tuesday Oct 10, 2023
Tuesday Oct 10, 2023
In this episode of Brain Injury Bites, Brooke Trotter and Ashwini Kamath continue their conversation with solicitor and professional deputy David Hilton, diving deeper into how the Court of Protection works and what it really means to manage someone’s affairs after a brain injury.
David explains the oversight and responsibilities that come with being a deputy, whether professional or a family member, and shares real life examples of how decisions are made, challenged and supported. The conversation covers financial safeguarding, unusual requests, emotional boundaries and the need for trust when supporting someone who lacks capacity.
They explore:
How the Office of the Public Guardian supervises deputies
The risks of financial misuse and what support exists for families
What a personal injury trust is and how it differs from deputyship
Changing deputies, and when the court may or may not agree
The emotional demands of the role and the need for objectivity
Real stories from practice, from sequin tuxedos to digital currency
Whether you are a deputy, a family member or someone supported by the Court of Protection, this episode offers clarity, reassurance and real world insight into a system designed to protect and empower.
For a transcript, follow the link below:
Episode Transcript
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Notice:
Information and other content provided in this Podcast should not be taken as providing medical advice or recommendations. Please always consult your doctor or treating team for medical advice.

Monday Oct 16, 2023
Monday Oct 16, 2023
In this episode of Brain Injury Bites, Brooke Trotter and Ashwini Kamath are joined by Julie Meigan, a specialist occupational therapist who supported Brooke during his early rehabilitation. They reconnect to explore the real value of occupational therapy and the challenges of rebuilding everyday life after a brain injury.
Julie explains how occupational therapists help people regain independence by breaking down daily tasks into manageable steps, setting meaningful goals, and tackling barriers such as fatigue, memory loss and lack of insight. Brooke shares how strategies like meal planning, structured rest and activity pacing helped him navigate the fatigue and overwhelm of recovery.
They explore:
What occupational therapy really is and how it supports recovery
Why meaningful goals matter more than generic tasks
The role of insight and motivation in successful rehabilitation
How fatigue affects everything from shopping to memory and mood
The three Ps of fatigue management: plan, pace and prioritise
Real world strategies for sleep, routine and managing energy
Whether you are living with a brain injury or supporting someone who is, this episode offers practical tools, professional insight and a heartfelt look at what it takes to rebuild life after injury — one step at a time.
For a transcript, follow the link below:
Episode Transcript
To keep up to date with our podcast, follow us on our social media accounts:
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Contact details:
juliemeighan@outlook.com
www.juliemeighantherapy.com
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Brain Injury Bites is now part of the Community Compass app! Download now and take the first step toward reclaiming your best life - because you’re not alone in this journey.
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Notice:
Information and other content provided in this Podcast should not be taken as providing medical advice or recommendations. Please always consult your doctor or treating team for medical advice.

Tuesday Oct 17, 2023
Occupational Therapy After Brain Injury (Part 2): Purpose, Support & Progress
Tuesday Oct 17, 2023
Tuesday Oct 17, 2023
In this episode of Brain Injury Bites, Brooke Trotter and Ashwini Kamath continue their conversation with specialist occupational therapist Julie Meigan, exploring what meaningful rehabilitation really looks like and how progress is built through collaboration, honesty and small practical steps.
Julie shares how working in a multidisciplinary team helps turn big goals into realistic plans, and why therapy should always be something done with, not to, a person. Together, they reflect on setbacks, unrealistic expectations and the power of celebrating small wins that add up over time.
They explore:
Why setting meaningful and achievable goals is key to motivation
The importance of collaboration between therapists, families and clients
How to adapt when goals are not met and why that is OK
Coping with disappointment when things feel harder than expected
Why insight can be both a breakthrough and an emotional challenge
Managing the return to work and the complex emotions that come with it
Whether you are recovering from a brain injury, supporting someone who is, or working in rehabilitation, this episode offers warmth, realism and professional insight into how recovery is rarely a straight line but always worth the journey.
For a transcript, follow the link below:
Episode Transcript
To keep up to date with our podcast, follow us on our social media accounts:
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Contact details:
juliemeighan@outlook.com
www.juliemeighantherapy.com
Community Compass app!
Brain Injury Bites is now part of the Community Compass app! Download now and take the first step toward reclaiming your best life - because you’re not alone in this journey.
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Notice:
Information and other content provided in this Podcast should not be taken as providing medical advice or recommendations. Please always consult your doctor or treating team for medical advice.

Monday Oct 23, 2023
Speech Therapy After Brain Injury (Part 1): with Catherine Davies
Monday Oct 23, 2023
Monday Oct 23, 2023
In this episode of Brain Injury Bites, Brooke Trotter and Ashwini Kamath are joined by Catherine Davies, a specialist speech and language therapist from SLT for Life, to explore the wide-ranging impact of communication and swallowing difficulties after a brain injury.
Catherine explains how speech and language therapy goes far beyond speech, helping with everything from breath control and word finding to emotional expression, social interaction and safe swallowing. Brooke reflects on his own journey through therapy, sharing real-life challenges and surprising insights, including how video feedback, dysarthria, and even jokes about venison played a role in his recovery.
They explore:
What speech and language therapy really involves after brain injury
Why swallowing is automatic, and how it can become dangerous when it goes wrong
Dysarthria, dyspraxia and how damaged muscles affect speech clarity
Cognitive fatigue, word finding, and the struggle to keep up in conversation
The emotional impact of losing confidence, self-awareness and social skills
Literal interpretation, humour and the hidden challenges of everyday interaction
Whether you are adjusting to life after brain injury or supporting someone who is, this episode offers clinical insight, personal experience, and real compassion for the complex role communication plays in recovery.
For a transcript, follow the link below:
Episode Transcript
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Brain Injury Bites is now part of the Community Compass app! Download now and take the first step toward reclaiming your best life - because you’re not alone in this journey.
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Notice:
Information and other content provided in this Podcast should not be taken as providing medical advice or recommendations. Please always consult your doctor or treating team for medical advice.

Tuesday Oct 24, 2023
Tuesday Oct 24, 2023
In this episode of Brain Injury Bites, Brooke Trotter and Ashwini Kamath continue their rich and insightful conversation with specialist speech and language therapist Catherine Davies, diving deeper into the subtleties of communication, voice, identity and recovery after a brain injury.
They explore how difficulties with speech, tone, social interaction and humour can have a profound impact on confidence and relationships. Catherine shares her experiences working across a wide spectrum of communication needs, including how small changes, such as using emojis or practising karaoke, can help rebuild self-expression, self-awareness, and connection.
They explore:
Why insight and “invisible” communication difficulties can affect quality of life
The emotional toll of feeling left behind socially or professionally
Disinhibition, misreading tone and how they affect relationships
Aphasia, dysphasia and the differences between speech and language issues
How singing, games and creativity can unlock communication
The importance of multidisciplinary teamwork in neurorehabilitation
Whether you are navigating recovery, working in healthcare or simply curious about the power of communication, this episode offers warmth, clinical clarity and real human stories that shine a light on the less visible sides of brain injury.
For a transcript, follow the link below:
Episode Transcript
To keep up to date with our podcast, follow us on our social media accounts:
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Brain Injury Bites is now part of the Community Compass app! Download now and take the first step toward reclaiming your best life - because you’re not alone in this journey.
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Notice:
Information and other content provided in this Podcast should not be taken as providing medical advice or recommendations. Please always consult your doctor or treating team for medical advice.

Monday Nov 13, 2023
Monday Nov 13, 2023
In this episode of Brain Injury Bites, Brooke Trotter and Ashwini Kamath are joined by occupational psychologist Suzanne Guest to explore how people with brain injury can rebuild their working lives — and why purpose, self-esteem and support are vital along the way.
Suzanne shares her experience helping people return to work or find meaningful activity after brain injury, whether through job retention, career change or developing new skills. They discuss how work is not just about income — it shapes identity, structure and confidence. Brooke opens up about his own journey, from uncertainty and depression to finding meaning through contribution and connection.
They explore:
What occupational psychology is, and how it supports brain injury rehabilitation
The role of work in self-worth, identity and everyday life
Why focusing on strengths matters just as much as managing difficulties
How goals, purpose and structure can protect mental health
Supporting people who are new to work, or returning after a long break
The emotional impact of career change, loss and starting again
Whether you are returning to work yourself or supporting someone through rehabilitation, this episode offers practical insight, honest conversation and hope for building a future after injury.
For a transcript, follow the link below:
Episode Transcript
To keep up to date with our podcast, follow us on our social media accounts:
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Helpful links:
Headway – Guide for employers: https://www.headway.org.uk/media/4123/brain-injury-a-guide-for-employers.pdf
Video Richard Hammond and Sterling Moss: https://www.youtube.com/watch?v=k6iVODBpatM
Video Imitation Game – Sandwiches: https://www.youtube.com/watch?v=Unfyov17E8s
Contact details:
https://www.workinmind.co.uk/
https://twitter.com/suzguest
https://www.tiktok.com/@haveigotsuzforyou
https://www.youtube.com/@haveigotsuzforyou
https://www.instagram.com/haveigotsuzforyou/
Community Compass app!
Brain Injury Bites is now part of the Community Compass app! Download now and take the first step toward reclaiming your best life - because you’re not alone in this journey.
Google Play
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Notice:
Information and other content provided in this Podcast should not be taken as providing medical advice or recommendations. Please always consult your doctor or treating team for medical advice.

Tuesday Nov 14, 2023
Tuesday Nov 14, 2023
In this episode of Brain Injury Bites, Brooke Trotter and Ashwini Kamath continue their conversation with occupational psychologist Suzanne Guest, diving into the real world challenges of returning to work, managing fatigue, and finding meaningful activity after a brain injury.
They explore what a phased return to work should look like — not just in hours, but in tasks, support and emotional readiness. Suzanne shares powerful insights into what makes return to work succeed or fail, and why sometimes success means choosing to leave with dignity rather than pushing through.
They explore:
The reality of invisible disabilities and misunderstanding in the workplace
What a meaningful phased return really involves — beyond a simple timetable
The emotional weight of leaving work and redefining your identity
How insight, anxiety and social interaction shape recovery
Creative ways to contribute when paid work is not the right path
Why little and often is often better than pushing through
Whether you are trying to get back to work or simply looking for ways to rebuild your confidence and routine, this episode offers honesty, humour and hope for adapting life to work for you — not the other way round.
For a transcript, follow the link below:
Episode Transcript
To keep up to date with our podcast, follow us on our social media accounts:
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Helpful links:
Headway – Guide for employers: https://www.headway.org.uk/media/4123/brain-injury-a-guide-for-employers.pdf
Video Richard Hammond and Sterling Moss: https://www.youtube.com/watch?v=k6iVODBpatM
Video Imitation Game – Sandwiches: https://www.youtube.com/watch?v=Unfyov17E8s
Contact details:
https://www.workinmind.co.uk/
https://twitter.com/suzguest
https://www.tiktok.com/@haveigotsuzforyou
https://www.youtube.com/@haveigotsuzforyou
https://www.instagram.com/haveigotsuzforyou/
Community Compass app!
Brain Injury Bites is now part of the Community Compass app! Download now and take the first step toward reclaiming your best life - because you’re not alone in this journey.
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Notice:
Information and other content provided in this Podcast should not be taken as providing medical advice or recommendations. Please always consult your doctor or treating team for medical advice.

Monday Dec 11, 2023
Monday Dec 11, 2023
In this episode of Brain Injury Bites, Brooke Trotter and Ashwini Kamath speak with neurological physiotherapist Colin Green to explore the realities of long-term rehabilitation after brain injury.
With over three decades of experience and a passion for supporting people beyond the NHS discharge point, Colin shares powerful insights into how physio can support recovery, adaptation, and quality of life, years after injury.
They dive into:
Why brain injury is a lifelong condition and what that means for care
The critical role of community-based neurorehabilitation
What “good” physio looks like for people with cognitive and behavioural challenges
How multidisciplinary teams can unlock better outcomes
Why some recovery plateaus aren’t the end, but a new phase
The importance of tailored, realistic rehab over generic routines
Whether you're navigating recovery yourself, supporting a loved one, or working in the brain injury space, this conversation challenges assumptions and highlights what’s possible when treatment continues beyond the hospital doors.
For a transcript, follow the link below:
Episode Transcript
To keep up to date with our podcast, follow us on our social media accounts:
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Contact details:
www.physio-matters.org
Physio Matters Neuro (@PMneurophysio) / X (twitter.com)
Physio Matters Neurological Ltd | Facebook
Contact No.: 0161 681 6887
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Brain Injury Bites is now part of the Community Compass app! Download now and take the first step toward reclaiming your best life - because you’re not alone in this journey.
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Notice:
Information and other content provided in this Podcast should not be taken as providing medical advice or recommendations. Please always consult your doctor or treating team for medical advice.

Tuesday Dec 12, 2023
Tuesday Dec 12, 2023
In this follow-up episode of Brain Injury Bites, Brooke Trotter and Ashwini Kamath continue their conversation with neurological physiotherapist Colin Green as they explore the longer-term realities of recovery, motivation and finding movement that works.
Colin unpacks what makes rehabilitation stick beyond the hospital and why success often depends less on routines and more on relationships, creativity and meaning. From support workers to ski slopes, he shares the power of tailored, activity-led rehabilitation in keeping people engaged and progressing.
They discuss:
How poor habits form during the sub acute phase and how to interrupt them early
The role of therapeutic alliance in keeping clients motivated and consistent
Why exercise sheets often fail and what to offer instead
Adaptive sports, functional goals and why enjoyment matters
The emotional challenges of redefining success including life in a wheelchair
Innovative equipment like the AlterG treadmill, Mollii suits and functional electrical stimulation
How to build goals that adapt as clients grow and change
Whether you are in rehabilitation, supporting someone who is or working in neuro care, this episode offers insight, humour and hope with a few lessons about tangerines along the way.
For a transcript, follow the link below:
Episode Transcript
To keep up to date with our podcast, follow us on our social media accounts:
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Instagram
Contact details:
www.physio-matters.org
Physio Matters Neuro (@PMneurophysio) / X (twitter.com)
Physio Matters Neurological Ltd | Facebook
Contact No.: 0161 681 6887
Community Compass app!
Brain Injury Bites is now part of the Community Compass app! Download now and take the first step toward reclaiming your best life - because you’re not alone in this journey.
Google Play
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Notice:
Information and other content provided in this Podcast should not be taken as providing medical advice or recommendations. Please always consult your doctor or treating team for medical advice.

Monday Feb 05, 2024
Monday Feb 05, 2024
In this episode of Brain Injury Bites, Brooke Trotter and Ashwini Kamath continue their conversation with specialist dietitian Sian Riley, delving deeper into the fascinating world of taste, smell, and how brain injury can alter the way we experience food and life.
Sian explains how damage to the brain can affect the senses, particularly smell and taste, which in turn have a huge impact on appetite, nutrition, mental health, and social connection. They also explore safety concerns, emotional well-being and practical solutions like smell training to help people navigate these changes.
They explore:
How smell and flavour are linked to appetite, memory and emotion
Anosmia, parosmia and the strange ways smell can return after injury
The emotional and social impact of losing the enjoyment of food
How smell loss affects safety — from spoiled food to gas leaks
Taste versus flavour — and why food might seem bland or unpleasant
Practical tools like smell training, dietary support and involving family
Whether you are living with a brain injury or supporting someone who is, this episode offers clarity, compassion and tangible advice for adapting to sensory changes and finding joy in food again.
For a transcript, follow the link below:
Episode Transcript
To keep up to date with our podcast, follow us on our social media accounts:
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Contact details:
www.redpeppernutrition.com
sian@redpeppernutrition.com
Helpful links:
Fifth Sense Charity - https://www.fifthsense.org.uk/
AbScent Charity - https://abscent.org/
The 5 basic tastes and why they matter to us - https://www.redpeppernutrition.com/wp-content/uploads/2022/01/red-pepper-nutrition-5-basic-tastes-why-they-matter.pdf
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Brain Injury Bites is now part of the Community Compass app! Download now and take the first step toward reclaiming your best life - because you’re not alone in this journey.
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Notice:
Information and other content provided in this Podcast should not be taken as providing medical advice or recommendations. Please always consult your doctor or treating team for medical advice.

Tuesday Feb 06, 2024
Diet and Brain Recovery (Part 2): Fueling the Healing Process – with Sian Riley
Tuesday Feb 06, 2024
Tuesday Feb 06, 2024
In this episode of Brain Injury Bites, Brooke Trotter and Ashwini Kamath continue their conversation with specialist dietitian Sian Riley, exploring how nutrition, identity and emotional wellbeing are deeply connected after a brain injury.
They discuss how food is more than fuel — it is linked to choice, independence, identity and even grief. Sian explains how brain injury can affect planning, appetite, routine, and body image, and shares how to work with these changes in a compassionate and realistic way. From mindful eating to meal planning, she offers ways to restore joy, autonomy and balance.
They explore:
How food supports not just healing, but independence and confidence
Meal planning, decision fatigue and how routine can reduce overwhelm
Why nutrition should feel achievable, not perfect
The psychological side of eating, including guilt, control and grief
How to approach changes in body image and identity after injury
Supporting long-term health and strength, not just weight
Whether you are recovering from a brain injury or supporting someone who is, this episode offers thoughtful, practical guidance on how to make food a positive and empowering part of life again.
For a transcript, follow the link below:
Episode Transcript
To keep up to date with our podcast, follow us on our social media accounts:
Twitter
Facebook
Instagram
Contact details:
www.redpeppernutrition.com
sian@redpeppernutrition.com
Helpful links:
Fifth Sense Charity - https://www.fifthsense.org.uk/
AbScent Charity - https://abscent.org/
The 5 basic tastes and why they matter to us - https://www.redpeppernutrition.com/wp-content/uploads/2022/01/red-pepper-nutrition-5-basic-tastes-why-they-matter.pdf
Community Compass app!
Brain Injury Bites is now part of the Community Compass app! Download now and take the first step toward reclaiming your best life - because you’re not alone in this journey.
Google Play
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Notice:
Information and other content provided in this Podcast should not be taken as providing medical advice or recommendations. Please always consult your doctor or treating team for medical advice.

Monday Jul 22, 2024
Monday Jul 22, 2024
In this episode of Brain Injury Bites, Brooke Trotter and Ashwini Kamath are joined by Tony Ward, a specialist dietitian and Director of Neuro Rehab Nutrition, to explore how food, supplements and nutrition play a vital role in brain injury recovery.
Tony shares practical advice on how to meet nutritional needs after brain injury, from boosting vitamin D and managing fatigue, to rebuilding muscle, navigating appetite changes and working closely with occupational therapists. Together, they explore why eating well is not just about nutrients, but about independence, identity and long-term recovery.
They explore:
What nutrients are often lacking after brain injury, and why
The importance of omega-3, antioxidants and balanced meals for healing
Why dietitians focus on food first, and supplements second
How early habits can shape long-term health outcomes
The challenges of creating a healthy diet while maintaining independence
Why emotional investment and choice matter in food and rehab
Whether you are recovering from a brain injury, supporting someone who is, or working in rehabilitation, this episode offers practical insight, thoughtful discussion and accessible guidance for making nutrition part of your recovery journey.
For a transcript, follow the link below:
Episode Transcript
To keep up to date with our podcast, follow us on our social media accounts:
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Contact details:
neurorehabnutrition.co.uk
tony@neurorehabnutrition.co.uk
Helpful links:
Food Facts - British Dietetic Association (BDA)
Community Compass app!
Brain Injury Bites is now part of the Community Compass app! Download now and take the first step toward reclaiming your best life - because you’re not alone in this journey.
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Notice:
Information and other content provided in this Podcast should not be taken as providing medical advice or recommendations. Please always consult your doctor or treating team for medical advice.

Tuesday Jul 23, 2024
Tuesday Jul 23, 2024
In this episode of Brain Injury Bites, Brooke Trotter and Ashwini Kamath continue their conversation with specialist dietitian Tony Ward, unpacking the myths, fads and emotional factors that influence how people eat after a brain injury.
They explore how food advice online can be confusing or even harmful, and why evidence-based guidance is crucial, especially when nutrition affects mood, memory, energy, and independence. Tony offers a practical, compassionate view of food as both fuel and comfort, and shares how personalised support can help people feel empowered, not restricted.
They explore:
Why social media and diet culture can lead people astray
The emotional side of eating, including grief, stress and comfort food
The gut-brain connection and how probiotics, fibre and variety help
Why frozen veg and simple swaps can make a big difference
Fitting healthy eating into real life, routine and budget
Success stories where balanced nutrition improved energy and well-being
Whether you are recovering from a brain injury or supporting someone who is, this episode offers a down-to-earth, evidence-based look at how food can be a powerful ally in healing and self-care.
For a transcript, follow the link below:
Episode Transcript
To keep up to date with our podcast, follow us on our social media accounts:
Twitter
Facebook
Instagram
Contact details:
neurorehabnutrition.co.uk
tony@neurorehabnutrition.co.uk
Helpful links:
Food Facts - British Dietetic Association (BDA)
Community Compass app!
Brain Injury Bites is now part of the Community Compass app! Download now and take the first step toward reclaiming your best life - because you’re not alone in this journey.
Google Play
Apple App Store
Notice:
Information and other content provided in this Podcast should not be taken as providing medical advice or recommendations. Please always consult your doctor or treating team for medical advice.

Tuesday Jan 28, 2025
Tuesday Jan 28, 2025
In this episode of Brain Injury Bites, Brooke Trotter and Ashwini Kamath speak with Emma Pilling, a parent navigating the emotional and practical realities of raising a child with an acquired brain injury. Emma shares the story of her son Charlie, who developed hydrocephalus as a baby, and reflects on the impact this had on her family, career and identity.
From the moment of diagnosis to advocating for her son’s education and wellbeing, Emma offers an unflinchingly honest account of the gaps in support, the grief of changed expectations, and the strength it takes to keep going. Now working for the Child Brain Injury Trust, she brings both lived and professional insight into how families can be better supported.
They explore:
What hydrocephalus is and how it can affect the developing brain
The emotional impact of a sudden diagnosis and medical trauma
Parenting through grief, guilt and uncertainty
Being dismissed by professionals and fighting to be heard
The importance of early intervention and trusting your instincts
Finding support, connection and purpose through lived experience
Whether you are a parent, professional or someone living with the effects of brain injury, this episode offers deep empathy, practical wisdom and a call to treat families with the compassion and clarity they deserve.
For a transcript, follow the link below:
Episode Transcript
To keep up to date with our podcast, follow us on our social media accounts:
Twitter
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Community Compass app!
Brain Injury Bites is now part of the Community Compass app! Download now and take the first step toward reclaiming your best life - because you’re not alone in this journey.
Google Play
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Notice:
Information and other content provided in this Podcast should not be taken as providing medical advice or recommendations. Please always consult your doctor or treating team for medical advice.

Tuesday Apr 22, 2025
Parenting After Pediatric Brain Injury: Life After Diagnosis – with Emma Pilling
Tuesday Apr 22, 2025
Tuesday Apr 22, 2025
In this episode of Brain Injury Bites, Brooke Trotter and Ashwini Kamath continue their moving and honest conversation with Emma Pilling, whose son Charlie was diagnosed with hydrocephalus and an acquired brain injury as a baby. Now an advocate and fundraiser, Emma shares how diagnosis is only the beginning of a long journey, one shaped by learning, grief, advocacy and extraordinary resilience.
Emma opens up about finding support through the Child Brain Injury Trust, building community through her blog, and the practical changes that make everyday life more accessible. She reflects on the emotional weight of parenting a child with complex needs, and the importance of acceptance, friendship and fighting for the support your child deserves.
They explore:
What real support from charities and professionals can look like
How to advocate for your child in education, healthcare and public spaces
The impact of invisible disability and why awareness still matters
Parenting without comparisons — letting go of milestones and expectations
Finding strength in shared experience and helping others through it
Why peace comes not from giving up, but from being supported to carry on
Whether you are a parent, a professional or simply someone seeking a better understanding of life after childhood brain injury, this episode offers honesty, compassion and the belief that every child deserves more than just a life; they deserve a full one.
Helpful links:
Emma's Blog
Child Brain Injury Trust
Shine Charity
Harry’s Hydrocephalus Awareness Trust
For a transcript, follow the link below:
Episode Transcript
To keep up to date with our podcast, follow us on our social media accounts:
Twitter
Facebook
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Community Compass app!
Brain Injury Bites is now part of the Community Compass app! Download now and take the first step toward reclaiming your best life - because you’re not alone in this journey.
Google Play
Apple App Store
Notice:
Information and other content provided in this Podcast should not be taken as providing medical advice or recommendations. Please always consult your doctor or treating team for medical advice.